My grandaughters battle

[bluestreak]

[video]https://www.fox13news.com/news/praying-for-a-cure-genetic-test-uncovers-florida-girls-extremely-rare-disorder[/video]

 

[meistro]

Oh my, I'm so sorry. I'll be praying for your granddaughter and your family. Puts our arguing about Sycamore sports in perspective.

 

[sycamorebacker]

Very sorry also. God bless you and your family.

 

[SycamoreStateofMind]

What a beautiful little girl. I hate this for you guys... Prayers up to her and your entire family. Thanks for sharing with us.

 

[IndyTreeFan]

Prayers for your family. God bless you all, may He give each of you strength, and peace.

 

[bent20]

Thanks for sharing her story. Feel terrible for her.

 

[Jason Svoboda]

That is absolutely awful.

Just did some reading on it. I saw there was one available treatment that they can even try with those infusions currently. I hope they make headway. Here is to hoping that gene editing continues to have crazy breakthroughs and they can figure out something.

Really wish quantum computing could mature and get here quicker for stuff like this.

 

[BlueBleeder]

This is heartbreaking, and we are praying for your whole family. Thank you for sharing her story and may God be with all of you through this difficult journey.

 

[Bluethunder]

Prayers for you and family. Please keep us updated.

 

[Southgrad07]

What a pretty smile on that little trooper! So sorry to hear about that. Praying for your family!

 

[TreeTop]

Wishing the best for her and your family.